Nomenclature of real patients in health professional education by role and engagement: a narrative literature review

Authors

  • Isabelle Burnier Université Ottawa
  • Grace Northrop University of Ottawa
  • Salomon Fotsing University of Ottawa

DOI:

https://doi.org/10.36834/cmej.72429

Abstract

Research problem: Real patients living with a disease and engaged in the education of healthcare professionals are referred to by different terms. To address this, A.Towle proposed a draft taxonomy.

Objective: Our objective is to extract from the literature the definitions given for the following terms: (1) patient educator, (2) patient instructor, (3) patient mentor, (4) partner patient, (5) patient teacher, (6) Volunteer Patient in order to clearly identify their roles and level of engagement.

Methods: The literature search was carried out in Medline, CINAHL, PsychInfo and Eric by adding medical education or healthcare professional to our previously identified keywords to ensure that it is indeed literature dealing with real patients’ involvement in the education of healthcare professionals. 

Results: Certain terms refer to real and simulated patients. Roles are more or less well described but may refer to multiple terms. The notion of engagement is discussed, but not specifically. 

Conclusion: Explicitly defining the terms used according to the task descriptions and level of engagement would help contribute to Towle’s taxonomy. Real patients would thus feel more legitimately involved in health professional education.

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Author Biographies

Isabelle Burnier, Université Ottawa

Assistant Professor, Department of Family Medicine,Faculty of Medicine ,University of Ottawa 

Co-Director of the Pre-clerkship - Francophone Stream
Director of Clinical Skills - Francophone Stream

Grace Northrop, University of Ottawa

Faculty of Medicine, MD candidate

Salomon Fotsing, University of Ottawa

Medical pedagogy manager

Francophone Affairs, Faculty of Medicine, University of Ottawa, Ottawa ON, Canada

References

Pomey MP, Flora L, Karazivan P, et al. Le «Montreal model»: Enjeux du partenariat relationnel entre patients et professionnels de la santé. Sante Publique (Paris). 2015;27:S41–50. 10.3917/spub.150.0041

Towle A, Bainbridge L, Godolphin W, et al. Active patient involvement in the education of health professionals. Medical Education.2010;44(1): p. 64–74. 10.1111/j.1365-2923.2009.03530.x

Bokken L, Rethans JJ, Scherpbier AJJA, Van Der Vleuten CPM. Strengths and weaknesses of simulated and real patients in the teaching of skills to medical students: A review. Simulation in Healthcare. 2008.3(3): p. 161–9. 10.1097/SIH.0b013e318182fc56

Costello J, Horne M. Patients as teachers? An evaluative study of patients’ involvement in classroom teaching. Nurse Educ Pract. 2001;1(2):94–102. 10.1054/nepr.2001.0014

Vail R, Mahon-Salazar C, Morrison A, Kalet A. Patients as teachers: An integrated approach to teaching medical students about the ambulatory care of HIV infected patients. Patient Educ Couns. 1996;27(1):95–101. 10.1016/0738-3991(95)00793-8

Jha V, Quinton ND, Bekker HL, Roberts TE. Strategies and interventions for the involvement of real patients in medical education: a systematic review. Med ed. 2009;43(1). p. 10–20. https://doi.org/10.1111/j.1365-2923.2008.03244.x

Towle A, Godolphin W. Patients as teachers: promoting their authentic and autonomous voices. Clin Teach. 2015 J;12(3):149–54. https://doi.org/10.1111/tct.12400

Cheng PTM, Towle A. How patient educators help students to learn: An exploratory study. Med Teach. 2017 Mar 4;39(3):308–14. https://doi.org/10.1080/0142159X.2017.1270426

Karazivan P, Dumez V, Flora L, et al. The patient-as-partner approach in health care: a conceptual framework for a necessary transition. Acad Med. 2015;90(4) p. 437–41. https://doi.org/10.1097/ACM.0000000000000603

Mougeot F, Robelet M, Rambaud C, et al. Emergence of the patient-actor in patient safety in France. A narrative review in social sciences and public health. Sante Publique. 2018;30(1):73–81. https://doi.org/10.3917/spub.181.0073

Saracci C, Mahamat M, Jacquérioz F. Comment rédiger un article scientifique de type revue narrative de la littérature ? Rev Med Suisse. 2019; 15(664): 1694-1698.

Demiris G, Oliver D, Washington K. Defining and Analyzing the Problem 3.1 INTRODUCTION. Behavioral Intervention Research in Hospice and Palliative Care. 2019; 27-39. https://doi.org/10.1016/B978-0-12-814449-7.00003-X

Oswald AE, Bell MJ, Wiseman J, Snell L. The impact of trained patient educators on musculoskeletal clinical skills attainment in pre-clerkship medical students. BMC Med Educ. 2011;11(1):65. https://doi.org/10.1186/1472-6920-11-65

Allen SS, Miller J, Ratner E, Santilli J. The educational and financial impact of using patient educators to teach introductory physical exam skills. Med Teach. 2011;33(11):911–8. https://doi.org/10.3109/0142159X.2011.558139

Do you know? Med Teach. 2004;26(6):579–80. https://doi.org/10.1080/01421590400012257

Humphrey-Murto S, Smith CD, Touchie C, Wood TC. Teaching the Musculoskeletal Examination: Are Patient Educators as Effective as Rheumatology Faculty? Teach Learn Med. 2004;16(2):175-180. https://doi.org/10.1207/s15328015tlm1602_10

Lauckner H, Doucet S, Wells S. Patients as educators: the challenges and benefits of sharing experiences with students. Med Educ. 2012;46(10):992–1000. https://doi.org/10.1111/j.1365-2923.2012.04356.x

Oswald A, Czupryn J, Wiseman J, Snell L. Patient-centred education: what do students think? Med Educ. 2014;48(2):170–80. https://doi.org/10.1111/medu.12287

Bideau M, Guerne PA, Bianchi MP, Huber P. Benefits of a programme taking advantage of patient-instructors to teach and assess musculoskeletal skills in medical students. Ann Rheum Dis. 2006;65(12):1626–30. https://doi.org/10.1136/ard.2004.031153

Hassell A. Patient instructors in rheumatology. Med teach. 2012;34(7): p. 539–42. https://doi.org/10.3109/0142159X.2012.678425

Roberts TE. Delivering tomorrow’s curriculum. Med teach. 2012;34(7): p. 519–20. https://doi.org/10.3109/0142159X.2012.689449

Henriksen A-H, Ringsted C, Henriksen A-H, Ringsted ÁC, Ringsted C. Medical students’ learning from patient-led teaching: experiential versus biomedical knowledge. Adv Heal Sci Educ. 2014;19:7–17. https://doi.org/10.1007/s10459-013-9454-8

Henriksen A-H, Ringsted C. Learning from patients: students’ perceptions of patient-instructors. Med Educ. 2011;45(9):913–9. https://doi.org/10.1111/j.1365-2923.2011.04041.x

Fong S, Tan A, Czupryn J, Oswald A. Patient-centred education: How do learners’ perceptions change as they experience clinical training? Adv Health Sci Educ Theory Pract. 2018;24(1):15–32. https://doi.org/10.1007/s10459-018-9845-y

Renard E, Alliot-Licht B, Gross O, Roger-Leroi V, Marchand C. Study of the impacts of patient-educators on the course of basic sciences in dental studies. Eur J Dent Educ. 2015;19(1):31–7. https://doi.org/10.1111/eje.12098

Oswald AE, Wiseman J, Bell MJ, Snell L. Musculoskeletal examination teaching by patients versus physicians: How are they different? Neither better nor worse, but complementary. Med Teach. 2011;33(5). https://doi.org/10.3109/0142159X.2011.557412

Coret A, Boyd K, Hobbs K, Zazulak J, Mcconnell M. Patient narratives as a teaching tool: a pilot study of first-year medical students and patient educators affected by intellectual/developmental disabilities. Teach Learn Med. 2018;30(3):317-327. https://doi.org/10.1080/10401334.2017.1398653

Solomon P. Student perspectives on patient educators as facilitators of interprofessional education. Med Teach. 2011;33(10):851–3. https://doi.org/10.3109/0142159X.2010.530703

Hedge N, Pickens N, Neville M. A model of clinical reasoning: what students learn from patient educators. Am J Occup Ther. 2015;69(Suppl. 1):6911510136p1. https://doi.org/10.5014/ajot.2015.69s1-po4082

Abdoolraheem MY, Zeina M. A perspective on simulated patients’ and patient-educators’ teaching of communication skills. Med Educ. 2018;52(10):1097–1097. https://doi.org/10.1111/medu.13646

Krautter M, Diefenbacher K, Schultz J-H, et al. Physical examination skills training: Faculty staff vs. patient instructor feedback—A controlled trial. PLoS One. 2017;12(7):e0180308. https://doi.org/10.1371/journal.pone.0180308

Martineau B, Mamede S, St-Onge C, Rikers RMJP, Schmidt HG. To observe or not to observe peers when learning physical examination skills; That is the question. BMC Med Educ. 2013;13(1):55. https://doi.org/10.1186/1472-6920-13-55

Wagner J, Arteaga S, D’Ambrosio J, et al. Dental Students’ Attitudes Toward Treating Diverse Patients: Effects of a Cross-Cultural Patient-Instructor Program. J Dent Educ. 2008;72(10):1128–34. https://doi.org/10.1002/j.0022-0337.2008.72.10.tb04590.x

34 Broder HL, Janal M. Promoting Interpersonal Skills and Cultural Sensitivity Among Dental Students. J Dent Educ. 2006;70(4):409–16. https://doi.org/10.1002/j.0022-0337.2006.70.4.tb04095.x

Yudkowsky R, Downing S, Klamen D, Valaski M, Eulenberg B, Popa M. Assessing the head-to-toe physical examination skills of medical students. Med Teach. 2004 Aug;26(5):415–9. https://doi.org/10.1080/01421590410001696452

Jaworsky D, Gardner S, Thorne JG, et al. The role of people living with HIV as patient instructors–reducing stigma and improving interest around HIV care among medical students*. AIDS Care - Psychol Socio-Medical Asp AIDS/HIV. 2017 Apr 3;29(4):524–31. https://doi.org/10.1080/09540121.2016.1224314

Broder HL, Janal M, Mitnick DM, Rodriguez JY, Sischo L. communication skills in dental students: new data regarding retention and generalization of training effects. J Dent Educ. 2015;79(8):940–8. https://doi.org/10.1002/j.0022-0337.2015.79.8.tb05985.x

Aires MJ, Gagnayre R, Gross O, et al. The patient teacher in general practice training: perspectives of residents. J patient Exp. 2019;6(4):287–95. https://doi.org/10.1177/2374373518803630

Roussel J-C. Le “patient formateur”, ou comment enseigner son propre vécu. Soins.2008;51(702):55-56.SOIN-11-2006-00-710-0038-0814-101019-200608990

Lown BA, Sasson JP, Hinrichs P. Patients as partners in radiology education: an innovative approach to teaching and assessing patient-centered communication 1. Acad Radiol. 2008;15(4):425. https://doi.org/10.1016/j.acra.2007.12.001

Fiddes PJ, Brooks PM, Komesaroff P. The patient is the teacher: ambulatory patient-centred student-based interprofessional education where the patient is the teacher who improves patient care outcomes. Intern Med J. 2013;43(7):747–50. https://doi.org/10.1111/imj.12197

Towle A, Bainbridge L, Farrell C, et al. Where’s the patient’s voice in health professional education? Conference presentations. Nurse Educ Pract. 2006;6(5):300–2. https://doi.org/10.1016/j.nepr.2006.04.009

Lai MMY, Martin J, Roberts N. Improving ambulatory patient-centred practice with a patient teaching associate programme. Intern Med J. 2015;45(8):883–4. https://doi.org/10.1111/imj.12813

Young K, Kaminstein D, Olivos A et al. Patient involvement in medical research: What patients and physicians learn from each other. Orphanet J Rare Dis. 2019;14(1):21. https://doi.org/10.1186/s13023-018-0969-1

Goulet M-H, Larue C, Chouinard C. Partage du savoir experientiel: regard sur la contribution des patients partenaires d’enseignement en sciences infirmieres. Sante Ment Que. 2015;40(1):53-66. https://doi.org/10.7202/1032382ar

Lierville Christine Grou Jean-François Pelletier A-L. Enjeux éthiques potentiels liés aux partenariats patients en psychiatrie : état de situation à l’institut universitaire en santé mentale de Montréal. 2015;40(1):119-134. https://doi.org/10.7202/1032386ar

Dahrouge S, James K, Gauthier A, Chiocchio F. Engaging patients to improve equitable access to community resources. CMAJ. 2018;190(S1): p. S46–7. https://doi.org/10.1503/cmaj.180408

Morin M-P, Schneider R, Martimianakis T, Bowen F, Mylopoulos M. A141: Active engagement of teens with juvenile idiopathic arthritis in medical education: what do they think their contribution might be? Arthritis Rheumatol. 2014;66:S184–S184. https://doi.org/10.1002/art.38562

Murphy RF, LaPorte DM, Wadey VMR. Musculoskeletal education in medical school: Deficits in knowledge and strategies for improvement. J Bone Jt Surg. 2014;96(23):2009–14. https://doi.org/10.2106/JBJS.N.00354

Barr J, Bull R, Rooney K, Barr J, Rooney ÁK, Bull R. Developing a patient focussed professional identity: an exploratory investigation of medical students’ encounters with patient partnership in learning. Adv Heal Sci Educ. 2015;20:325–38. https://doi.org/10.1007/s10459-014-9530-8

Anderson ES, Ford J, Thorpe L. Perspectives on patients and carers in leading teaching roles in interprofessional education. J Interprof Care. 2019;33(2):216-225. https://doi.org/10.1080/13561820.2018.1531834

Webster BJ, Goodhand K, Haith M, Unwin R. The development of service users in the provision of verbal feedback to student nurses in a clinical simulation environment. 2011; 32(2):133-138. https://doi.org/10.1016/j.nedt.2011.10.003

Towle A, Godolphin W. Patients as educators: Interprofessional learning for patient-centred care. Med Teach. 2013;35(3):219–25. https://doi.org/10.3109/0142159X.2012.737966

Pageau S, Burnier I, Fotsing S. Stratégies de recrutement et de formation des patients en éducation : une synthèse de la littérature. Pédagogie Médicale. 2021;22(2):91–100. https://doi.org/10.1051/pmed/2021008

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Published

2022-08-13

How to Cite

1.
Burnier I, Northrop G, Fotsing S. Nomenclature of real patients in health professional education by role and engagement: a narrative literature review. Can. Med. Ed. J [Internet]. 2022 Aug. 13 [cited 2024 Nov. 21];13(5):69-76. Available from: https://dev.journalhosting.ucalgary.ca/index.php/cmej/article/view/72429

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Reviews, Theoretical Papers, and Meta-Analyses

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