Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context

Lawrence Grierson; Alice Cavanagh; Alaa Youssef; Rachelle Lee-Krueger; Kestrel McNeill; Brenton Button; Kulamakan Kulasegaram

doi:10.36834/cmej.75874

Auteurs-es

Lawrence Grierson McMaster University https://orcid.org/0000-0003-0739-5976
Alice Cavanagh McMaster University
Alaa Youssef Stanford School of Medicine https://orcid.org/0000-0001-6505-8236
Rachelle Lee-Krueger University of Ottawa https://orcid.org/0000-0001-6122-1868
Kestrel McNeill McMaster University
Brenton Button Northern Ontario School of Medicine
Kulamakan Kulasegaram University of Toronto

DOI :

https://doi.org/10.36834/cmej.75874

Résumé

Contexte : Des données administratives sont générées dans le cadre des processus de formation des médecins, d’octroi de permis d’exercice et de réglementation des activités professionnelles, mais ces données sont rarement utilisées en dehors de leurs fins premières. Il convient de créer un dispositif de supervision réactive et sensible aux risques pour permettre le partage de données relatives à l’enseignement médical entre établissements à des fins de recherche.

Méthode : Une initiative pancanadienne de recherche de consensus a été réalisée pour parvenir à un accord sur les objectifs, les avantages, les risques, les valeurs et les principes qui devraient sous-tendre la recherche interinstitutionnelle sur l’enseignement médical à l’aide des données existantes. Ce projet s’est appuyé sur une analyse de la littérature scientifique, sur des consultations avec diverses parties prenantes et sur cinq ateliers successifs de synthèse des connaissances. Des discussions ont été menées sur la base de propositions formulées préalablement jusqu’à la cristallisation d’un accord collectif.

Résultats : Un consensus s’est dégagé autour de six principes clés : l’établissement a priori d’objectifs, d’une logique et d’une méthodologie clairs pour la recherche inter-institutionnelle fondée sur les données; l’obtention, sans exception, du consentement éclairé des personnes concernées par la collecte de données dans les systèmes d’éducation; la création d’un cadre de gouvernance visant spécifiquement le partage des données entre établissements; le respect, dans ce cadre, de la souveraineté des données; l’utilisation des données fondée sur un ensemble de valeurs partagées; et l’application des meilleures pratiques en matière de gestion des données de recherche.

Conclusion : En vue du partage des données administratives relatives à l’enseignement médical à des fins de recherche au Canada, nous recommandons la création d’une instance de gouvernance représentative ainsi que l’utilisation d’infrastructures fiables et le respect des politiques existantes régissant la gestion des données.

Statistiques

Chargement des statistiques…

Bibliographies de l'auteur-e

Lawrence Grierson, McMaster University

Lawrence Grierson is an Associate Professor, Department of Family Medicine, and Scientist, McMaster Education Research, Innovation, and Theory (MERIT), Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada; ORCID: https://orcid.org/0000-0003-0739-5976

Alice Cavanagh, McMaster University

Alice Cavanagh is an MD-PhD Candidate, Michael G. DeGroote School of Medicine, McMaster University and Health Policy PhD Program, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada; ORCID: https://orcid.org/0000-0003-3256-8322

Alaa Youssef, Stanford School of Medicine

Alla Youssef is a Postdoctoral Fellow, Stanford Center for Artificial Intelligence in Medicine and Imaging, Department of Radiology, Stanford School of Medicine, Stanford, California, USA.

Rachelle Lee-Krueger, University of Ottawa

Rachelle Lee-Krueger is a PhD Candidate, Faculty of Education, University of Ottawa, Ottawa, Ontario, Canada, and Education Consultant, Office of Continuing Medical Education & Professional Development, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada; ORCID: https://orcid.org/0000-0001-6122-1868

Kestrel McNeill, McMaster University

Kestrel McNeill is a PhD Student, Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; ORCID: https://orcid.org/0000-0002-4374-6510

Brenton Button, Northern Ontario School of Medicine

Brenton Button is a Postdoctoral Fellow, Northern Ontario School of Medicine University, Thunder Bay, Ontario, Canada and Assistant Professor, Faculty of Education, University of Winnipeg, Winnipeg, Manitoba, Canada; ORCID: https://orcid.org/0000-0002-2264-0987

Kulamakan Kulasegaram, University of Toronto

Kulamakan Kulasegaram is an Associate Professor, Department of Community and Family Medicine, University of Toronto and Scientist at Wilson Centre, University of Toronto, Toronto, Ontario, Canada; ORCID: https://orcid.org/0000-0002-6644-0098

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