Développement d'une échelle interdisciplinaire bilingue évaluant l'auto-efficacité à participer à l'aide médicale à mourir

Auteurs-es

DOI :

https://doi.org/10.36834/cmej.76161

Résumé

L'aide médicale à mourir (AMM) est un processus complexe impliquant la personne qui demande le soin et ses proches. L'AMM implique des besoins physiques, psychosociaux et spirituels. Par conséquent, l'implication d'une équipe interdisciplinaire est bénéfique et la mise à niveau des connaissances et des compétences des professionnel.es est essentielle. Une équipe interdisciplinaire de l'Université Laval (Québec, Canada) a développé un programme de formation continue destiné aux professionnelles de la santé et des services sociaux susceptible d'être impliqué es dans ls soins et services des personnes qui demandent l’AMM et de leurs proches. Il est crucial d'évaluer si les objectifs du programme de formation continue sont atteints, d'autant plus que cette nouvelle formation aborde plusieurs questions complexes (juridiques, éthiques et cliniques). La théorie du sentiment d'auto efficacité de Bandura a été largement utilisée pour développer des échelles permettant d'évaluer l'impact des programmes de formation et d'identifier les lacunes en matière de connaissances. Cette théorie stipule que le fait de se sentir sûre de son efficacité personnelle conduit à une motivation intrinsèque à accomplir le comportement visé. Bien qu'il existe plusieurs échelles destinées à mesurer l'auto-efficacité dans le domaine des soins palliatifs, aucune n'inclut l'auto-efficacité pour la participation au processus entourant l’AMM. Par conséquent, nous développons une échelle interdisciplinaire bilingue (anglais-français) pour évaluer l'auto-efficacité à participer au processus entourant l’AMM. L'échelle permettra aux décideuses, décideurs et aux chercheuses et chercheurs d'identifier les lacunes actuelles en matière de connaissances. Elle sera également utile pour évaluer l'impact des programmes de formation actuels et futurs portant sur cette pratique de fin de vie. Dans cet article, nous présentons brièvement le programme de formation et les étapes futures du développement et de la validation de l'échelle.

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Bibliographies de l'auteur-e

Diane Tapp, Université Laval

Diane Tapp, RN, is an associate professor at the Faculty of Nursing at Université Laval in Québec, Canada and the director of the Institute of Palliative and End of Life Care at this same university. She is also affiliated to the Québec Heart and Lung Institute-Université Laval Research Center– Laval University. She is the principal investigator of this research project. She conceptualized the project and its objectives. She made substantial contributions to developing the scale, data analysis and interpretation, and critically reviewing the article. She also approved the version to be published. She agreed to be accountable for all aspects of this work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Nathalie Boudreault, Université Laval

Nathalie Boudreault, MD, is a professor at the Faculty of Medicine at Université Laval, a family physician and a researcher affiliated to the CHU de Québec-Université Laval Research Center.  She made substantial contributions to: scale conception and design, data collection, analysis and interpretation, as well as revising the manuscript.  She approved the version to be published.  She agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Isabelle St-Pierre, Université Laval

Isabelle St-Pierre is a pedagogical consultant specialized in higher education at the faculty of Medicine of Université Laval. She made substantial contributions to: scale conception and design, data collection, analysis and interpretation, as well as drafting and revising the manuscript. She approved the version to be published. She agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Sarah-Caroline Poitras, Université Laval

Sarah-Caroline Poitras is an evaluation and statistics consultant at the Faculty of Medicine of Université Laval. She made substantial contributions to scale conception and design, data collection, analysis and interpretation, as well as drafting and revising the manuscript.  She approved the version to be published.  She agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Elizabeth Lemay, Université Laval

Elizabeth Lemay is a student at the Faculty of Medicine at University. She made substantial contributions to: scale conception and design, data collection, analysis and interpretation, translation of the scale, and drafting the article. She approved the version to be published.  She agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Luis Alejandro Urrea, Université Laval

Luis Alejandro Urrea, is a student at the Faculty of Medicine at Université Laval and is completing a law degree. He made substantial contributions to the drafting, conception and design of the scale, as well as data collection, analysis and interpretation. He revised the manuscript and approved the version to be published. He agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Amélie Lapointe, Université Laval

Amélie Lapointe is a student at the Faculty Medicine at Université Laval and has completed a law degree. She made substantial contributions to scale conception, design, and revision, data collection, analysis and interpretation. She revised the manuscript and approved the version to be published.  She agreed to be accountable for all aspects of the work by ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved. 

Références

Brown, J. Goodridge D, Harrison A, Kemp J, Thorpe L, Weiler R. Care considerations in a patient- and family-centered medical Assistance in Dying program. J. Palliat. Care. 2022;37,341‑351 https://doi.org/10.1177/0825859720951661

Hill JE, Stephani A-M, Sapple P, Clegg AJ. The effectiveness of continuous quality improvement for developing professional practice and improving health care outcomes: a systematic review. Implement. Sci. 2020;15,23 https://doi.org/10.1186/s13012-020-0975-2

Dehghani F, Barkhordari-Sharifabad M, Sedaghati-Kasbakhi M, Fallahzadeh H. Effect of palliative care training on perceived self-efficacy of the nurses. BMC Palliat. Care 2020;19,63. https://doi.org/10.1186/s12904-020-00567-4

Liu L, Zhao Y-Y, Zhang L-H, Chan HY-L. Measuring self-efficacy and readiness for advance care planning in Chinese older adults. J. Pain Symptom Manage. 2020;60,622‑629. https://doi.org/10.1016/j.jpainsymman.2020.06.013

Bandura. Self-efficacy: the exercice of control. 1997; W. H. Freeman.

Phillips J, Salamonson Y, Davidson PM. An instrument to assess nurses' and care assistants' self-efficacy to provide a palliative approach to older people in residential aged care: a validation study. Int. J. Nurs. Stud. 2011;48, 1096‑1100. https://doi.org/10.1016/j.ijnurstu.2011.02.015

Desbiens J-F, Fillion L. Development of the palliative care nursing self-competence scale. J. Hosp. Palliat. Nurs. 2011;13, 230‑241. https://doi.org/10.1097/NJH.0b013e318213d300

Terwee CB, Prinse CAC, Chiarotto A, et al. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. Qual. Life Res. 2018;27,1159‑1170. https://doi.org/10.1007/s11136-018-1829-0

Boateng GO, Neilands TB, Frongillo EA, Melgar-Quiñonez HR, Young SL. Best practices for developing and validating scales for health, social, and behavioral research: a primer. Front. Public Health 2018;6,149. https://doi.org/10.3389/fpubh.2018.00149

Collège des médecins du Québec et al. Guide d'exercice et lignes directrices pharmacologiques. 2019;226. https://numerique.banq.qc.ca/patrimoine/details/52327/3438

LeBlanc S, MacDonald S, Martin M, Dalgarno N, Schultz K. Development of learning objectives for a medical assistance in dying curriculum for Family Medicine Residency. BMC Med. Educ. 2022;22,167. https://doi.org/10.1186/s12909-022-03204-1

Zamanzadeh V, Ghahramanian A, Rassouli M, Abbaszadeh A, Alavi-Majd H, Nikanfar A-R. Design and implementation content validity study: development of an instrument for measuring patient-centered communication. J. Caring Sci. 2015;4,165‑178 https://doi.org/10.15171/jcs.2015.017

Polit DF, Beck CT, Owen SV. Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Res. Nurs. Health 30, 459‑467 (2007). https://doi.org/10.1002/nur.20199

Koller M, Aaronson NK, Blazeby J, et al. Translation procedures for standardised quality of life questionnaires: the European Organisation for Research and Treatment of Cancer (EORTC) approach. Eur. J. Cancer. 2007;43, 1810‑1820. https://doi.org/10.1016/j.ejca.2007.05.029

Brislin RW. Back-translation for cross-cultural research. J. Cross. Cult. Psychol. 1, 1970;185‑216. https://doi.org/10.1177/135910457000100301

Bertrand R, Blais J-GR, Bertrand J-G. Modèles de mesure : l'apport de la théorie des réponses aux items. 2004;376, 37‑69.

Polit DF, Beck CT. Nursing research: generating and assessing evidence for nursing practice. 2021. Wolters Kluwer.

Devellis RF, Thorpe CT. Scale development. 2021. Sage Publications.

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Publié-e

2023-04-29

Comment citer

1.
Tapp D, Plaisance A, Boudreault N, St-Pierre I, Desbiens J-F, Poitras S-C, Lemay E, Urrea LA, Lapointe A, Henry M, Bravo G. Développement d’une échelle interdisciplinaire bilingue évaluant l’auto-efficacité à participer à l’aide médicale à mourir. Can. Med. Ed. J [Internet]. 29 avr. 2023 [cité 18 sept. 2024];. Disponible à: https://dev.journalhosting.ucalgary.ca/index.php/cmej/article/view/76161

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